Friday morning

The doctors, in their rounds this morning, said that a transplant is still the best option.  During the meantime, they will up her dose of heart-function medication called Milrinone, and try and take her off of the breathing tube to see how she does on her own.  The surgeon said that they have had kids waiting for transplants that have responded to heart-function medication and have felt better while waiting for the transplant.  In these cases, the kids have been able to go home for awhile and then come back.  Right now, Rachel is still without a lot of energy so it will be interesting to see how she responds to the Milrinone.
Also, the surgeon said that the best thing for her, and us, while waiting is to be "bored and frustrated."  He explained that if everything is "boring and frustrating" then that means everything is easier on her and less procedures/tests/surgery while waiting for the transplant.  So pray for her and us to be "bored and frustrated."  If things aren't boring and frustrating then that means a more difficult time for her.  She could not respond to the Milirone and get any stronger in which case they may have to do surgery as a temporary fix which would complicate transplant procedures and test.  She could develop infections that could also complicate things too.  So if we are "bored and frustrated" while waiting, that is a really, really, really good thing.  We did tell the surgeon that we are experienced at being frustrated so we shouldn't have any problems with that.
Also, we are suppose to meet with someone, hopefully today, that will talk to us about the transplant.  Not sure when that will happen.