Monday, July 25, 2011

Monday afternoon/evening

Well,we are just about to go postal on some doctors up here in the unit as they have done made Momma mad and you know the old saying, "If Momma ain't happy ain't nobody happy."  During rounds this morning, the critical care doctors made it sound as if the numbers indicated that Rachel's liver and kidney were taking a major hit from her heart failure.  They made it sound that her body was beginning to shut down.  However, when the surgeon came by later on this evening (he was not present during morning rounds) he said that she is stable and maintaining.  He did say that her liver numbers look good but her kidney numbers were elevated.  He said that as long as the kidney numbers plateau out and don't go up dramatically, she should be okay.  He did say that he was concerned about the fact that she hasn't been able to get her feeds through the feeding tube cause she has felt nauseated and having "loose poops."  He said that he has seen this before in other kids waiting on a heart to where their digestive system begins to have problems.  He added that it is probably due to the blood not flowing out enough to her gut.  We did ask him about all of the problems she is encountering:  the digestive system issue, the liver/kidney numbers, etc., and he said that this is not uncommon in children waiting on a heart; that he has seen it before.  He did caution us that they are still very concerned, mainly about her not being able to get enough nutrition.  They did start her on TPN and Lipids to counter her not getting the nutrition through the feeding tube.  TPN contains all of the vitamins and nutrition that she needs and the Lipids is fat but the problem is that its coming through an IV and is not the ideal way to get nutrition into the body; it is not designed for long term use.
Also, early this morning, around 2:00 a.m., she encountered another arrithymia issue causing the pacemaker to go off.
So, please pray more urgently that a heart will come in really quick and in the meantime that she doesn't have anymore arrityhmia issues as that hurts her total heart function even more than what it is.
So to recap:  Pray for a heart to come in quick.  Pray for a heart to come in quick,  Pray for a heart to come in quick.  Pray for a heart to come in quick.  Hopefully, a heart will come in quick.

1 comment:

Cindy said...

We are praying for a heart to come in quickly! We love all of you!